A child attending a press conference held by about 100 members of the Korea Type 1 Diabetes Patients Association held at the Community Center in Boram-dong, Sejong City on the morning of the 15th, cried while calling for designation of type 1 diabetes as a severe incurable disease and support for medical expenses without distinction of age. Building. /News 1
Recently, a couple in Taean-gun, South Chungcheong Province, made an extreme choice with their child who suffered from type 1 diabetes (juvenile diabetes), and the patient association called for designating type 1 diabetes as a serious incurable disease and strengthening support for medical expenses.
Type 1 diabetes is a disease in which blood sugar levels cannot be controlled because the pancreas does not secrete insulin. It usually occurs in children and adolescents and is also called ‘juvenile diabetes.’ It is different from adult diabetes caused by eating habits or obesity. This disease requires early insulin treatment to prevent acute complications. It is difficult to cure completely and requires lifelong management. There have been voices saying that due to the nature of pediatric diseases, the mental and financial burden on patients and their guardians is high.
Meanwhile, the issue of type 1 diabetes surfaced on the 9th when a couple in Taean made a tragic choice with their 9-year-old daughter suffering from type 1 diabetes. “It breaks my heart that her daughter is going through such a difficult time,” the couple’s note said. It was reported that it included content to the effect that “she is also in great financial difficulty.”
About 100 members of the Korea Type 1 Diabetes Patients Association held an emergency press conference in Sejong City on the 15th and said, “It is an unimaginable pain to see a child suffering from an insulin injection administered directly by his or her parents,” and added, “It is a tragedy for the Taean family.” “It’s no one else’s business,” he said. In addition, the use of devices such as continuous blood sugar monitors and automatic insulin injectors is essential for artificial blood sugar management, but the purchase of devices is not covered by medical care benefits and is partially supported by medical expenses, so the actual out-of-pocket costs for patients are high.
The patient association said, “Currently, type 1 diabetes is not recognized as a serious incurable disease because it does not meet the standards for patient medical expenses,” and requested that type 1 diabetes be designated as a serious incurable disease so that patients can receive treatment and education at tertiary general hospitals. They then requested that medical expenses be converted to nursing care benefits regardless of patient age and that the out-of-pocket rate be lowered to less than 10%.
The patient association also requested that the name ‘juvenile diabetes’ not be used. The organization said, “The name juvenile diabetes is an unidentified disease name that is a combination of type 1 and type 2 diabetes, causing many misunderstandings and prejudices,” and added, “This disease requires lifelong blood sugar control to survive without complications, so it is essential for daily life and “It is a pancreatic disorder that greatly limits career choices,” he said.
The patient association said, “Although type 1 diabetes is a serious and incurable disease, it is a disease that can be sufficiently improved if professional education and institutional support using the latest medical technology are provided,” and added, “We hope that the tragedy that happened to the ‘Taean type 1 diabetes family’ will never happen again.” “I hope you will listen to the earnest appeals of patients who wish to receive treatment,” he said.
2024-01-15 08:36:52
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