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Understanding Hereditary Forms of Diabetes: MODY, MIDD, and Neonatal – Diabetes Fund Campaign

Medicalfacts Editorial / Janine Budding November 22, 2023 – 11:11 PM

Most people are familiar with diabetes types 1 and 2. But there are also other forms that are less known and less common, such as hereditary diabetes. Forms of hereditary diabetes are MODY, MIDD and neonatal diabetes. Unfortunately, people with hereditary diabetes often first receive a different diagnosis and therefore usually do not receive a suitable treatment. That is why the Diabetes Fund is starting a campaign this week to make people more aware and aware of hereditary forms of diabetes.

Hereditary diabetes is less common than diabetes types 1 and 2 and is therefore less known. The result is that 80 percent of people with MODY first receive another diagnosis. Just like doctors, people with diabetes are not always aware of these hereditary forms. A different diagnosis can have major consequences, for example receiving the wrong treatment for years.

Forms of hereditary diabetes

There are different forms of hereditary diabetes. MODY, MIDD and neonatal diabetes are the most common. A change in the DNA can cause a person to develop hereditary diabetes. That person usually inherits it from the father or mother. Heredity therefore plays a very important role in hereditary diabetes. Much more than with type 1 or 2 diabetes.

Consequences of hereditary diabetes for the family

If you have a hereditary form of diabetes, family members may also have or develop a hereditary form. It concerns parents, children, brothers and sisters. With MODY the chance of the hereditary predisposition is even 50 percent. People with a hereditary predisposition to MODY usually also get MODY. If family members know that hereditary diabetes runs in the family, they can sometimes be diagnosed earlier. This may prevent or limit complaints and problems.

Country Over

The campaign includes a online knowledge test. This test is intended to inform and alert people about the characteristics of hereditary forms of diabetes. If they recognize the characteristics in themselves, it is advisable to talk to their doctor. If someone truly has hereditary diabetes, treatment may need to be adjusted. For example, no longer treatment with insulin, but with tablets.

Experiences with MODY in mini-documentaries

Two people tell in two mini-documentaries about their experiences with the hereditary diabetes form MODY. They talk, among other things, about the consequences the misdiagnosis of diabetes has had on their lives. Stefanie was initially diagnosed with type 1 and Dennis with type 2. After they learned that they actually had MODY, their treatment was adjusted and family members could also be tested for MODY. In a third documentary, internist-endocrinologist Marielle Schroijen (LUMC) tells everything about MODY, for example how you can recognize it.

Bron: Diabetes Fonds

Editorial Medicalfacts / Janine Budding

I have specialized in interactive news for healthcare providers, so that healthcare providers are aware of news that may be relevant to them every day. Both lay news and news specifically for healthcare providers and prescribers. Social Media, Women’s Health, Patient advocacy, patient empowerment, personalized medicine & Healthcare 2.0 and the social domain are key points for me to pay extra attention to.

I studied physiotherapy and health care business administration. I am also a registered independent client supporter and informal care broker. I have a lot of experience in various positions in healthcare, the social domain and the medical and pharmaceutical industries, nationally and internationally. And I have broad medical knowledge of most specialties in healthcare. And the healthcare laws from which healthcare is regulated and financed. I attend most of the leading medical conferences in Europe and America every year to keep my knowledge up to date and to keep up with the latest developments and innovations. I am currently doing a Masters in applied psychology.

My messages on this weblog do not reflect the strategy, policy or direction of an employer, nor are they work by or for a client or employer.

2023-11-22 22:13:25
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