https://ria.ru/20201028/lechenie-1581956043.html
The state will fund the treatment of spinal muscular atrophy
The main freelance specialists of the Ministry of Health presented proposals for financing the treatment of 19 orphan diseases, including spinal muscular atrophy, … RIA Novosti, 10/28/2020
2020-10-28T16:42
2020-10-28T16:42
2020-10-28T18: 30
spinal muscular atrophy (SMA)
Russia
health – society
tatiana golikova
/html/head/meta[@name=”og:title”]/@content
/html/head/meta[@name=”og:description”]/@content
–
https://cdn21.img.ria.ru/images/07e4/0a/1c/1581973401_0:0:640:360_1400x0_80_0_0_15f5d27b8ba21b8c2353c9f8a5826672.jpg
MOSCOW, Oct 28 – RIA Novosti. The main freelance specialists of the Ministry of Health presented proposals for financing the treatment of 19 orphan diseases, including spinal muscular atrophy, the Deputy Prime Minister told reporters Tatiana GolikovaAccording to Golikova, spinal muscular atrophy has become common, but drugs for its treatment are very expensive – parents cannot afford them. Deputy Prime Minister noted that these funds will finance the direction related to consumables and medical products. necessary in the provision of high-tech care, including those that are not produced in Russia, but fundamentally change the quality of life of the child. A special fund will be involved in the selection of patients and the purchase of drugs for the treatment of orphan diseases, through which about 25 thousand children will be able to receive help, said Golikova: Organization of assistance to children with serious and rare diseases became the central topic of the President’s meeting Vladimir Putin with members of the government. At the meeting, the Deputy Prime Minister said, the President was told how it is proposed to use the 60 billion rubles allocated for this purpose next year. Golikova added that the meeting was preceded by serious work of the medical and expert community, the main freelance specialists of the Ministry of Health who deal with childhood diseases. And now the final decision is already being worked out. According to Putin’s proposal, from January 1, 2021, the flat income tax rate will be canceled, increasing it from 13 to 15 percent for income in excess of five million rubles a year. The funds from this increase will be used to treat children with orphan diseases.
https://ria.ru/20200720/1574586593.html
https://sn.ria.ru/20200228/1565314924.html
12
RIA Novosti
Russia, Moscow, Zubovsky Boulevard, 4
7 495 645-6601
https://xn--c1acbl2abdlkab1og.xn--p1ai/awards/
–
2020
RIA Novosti
Russia, Moscow, Zubovsky Boulevard, 4
7 495 645-6601
https://xn--c1acbl2abdlkab1og.xn--p1ai/awards/
ru-RU
https://ria.ru/docs/about/copyright.html
https://xn--c1acbl2abdlkab1og.xn--p1ai/
RIA Novosti
Russia, Moscow, Zubovsky Boulevard, 4
7 495 645-6601
https://xn--c1acbl2abdlkab1og.xn--p1ai/awards/
–
SMA and oncology: Golikova told what childhood diseases they will spend 60 billion rubles on
Tatyana Golikova talked about how 60 billion rubles will be spent on the treatment of which rare diseases next year. The proposals were presented to the head of state today.
2020-10-28T16:42
true
PT0M58S
–https://cdn23.img.ria.ru/images/07e4/0a/1c/1581973401_81:0:561:360_1400x0_80_0_0_7ef869e26ce9e64515cc26aa6f3d1823.jpg
RIA Novosti
Russia, Moscow, Zubovsky Boulevard, 4
7 495 645-6601
https://xn--c1acbl2abdlkab1og.xn--p1ai/awards/
–
RIA Novosti
Russia, Moscow, Zubovsky Boulevard, 4
7 495 645-6601
https://xn--c1acbl2abdlkab1og.xn--p1ai/awards/
–
spinal muscular atrophy (SMA), russia, health – society, tatiana golikova
–
According to Golikova, spinal muscular atrophy has become common, but drugs for its treatment are very expensive – parents cannot afford them.
–
July 20, 11:58
Kuznetsova told how much money is needed for the treatment of patients with SMA—
“And today we can say that such a decision has taken place and this disease will be included in the list of diseases that will be financed from this source. In addition, 18 more orphan diseases, as well as 29 diseases that pose a threat to the life and health of young patients. diseases of cancer, endocrinology and a number of other areas, the purchase of drugs for which is expensive for families, “she said.
—
The Deputy Prime Minister noted that these funds will finance the direction related to consumables and medical products needed in the provision of high-tech assistance, including those that are not produced in Russia, but fundamentally change the quality of life of a child.
–
A special fund will be engaged in the selection of patients and the purchase of drugs for the treatment of orphan diseases, through which about 25 thousand children will be able to receive help, Golikova said.
–
Golikova added that the meeting was preceded by the serious work of the medical and expert community, the main freelance specialists of the Ministry of Health who deal with childhood diseases, and now the final decision is being worked out.
–
On the proposal of Putin, from January 1, 2021, the flat scale of the income tax will be canceled, increasing it from 13 to 15 percent for income in excess of five million rubles a year. The funds from this increase will be used to treat children with orphan diseases.
–
–
February 28, 11:42
How to get preferential treatment for an orphan disease: legal advice— .
