Six-year-old Sebastian Nunney from England was diagnosed with a rare type of cancer already at the age of three.
This is reported by Lokalavisa Wales Online.
Rare tumor
At first, Sebastian’s GP assumed that he was suffering from a completely normal ear infection, claims Sebastian’s mother, Linday Nunney (41).
That was until the doctors at a hospital in England found out that he had the cancer neuroblastoma.
According to Norwegian Health Informatics (NHI) Neuroblastoma is a tumor disease that occurs in infants and young children in the part of the nervous system called the sympathetic nervous system.
Thought she was pregnant
– Neuroblastoma causes more than seven percent of all cancers in people under the age of 15, and is the third most frequent cancer in children, they write.
In Norway, ten people are diagnosed with neuroblastoma per year, according to Large Medical Encyclopedia (SML).
Not taken seriously
Mora Linday has long felt that Sebastian was not followed up well enough when she first took her son to the GP.
In 2020, in the middle of the corona pandemic, the GP did not want to have physical doctor’s appointments with his patients, the mother claims.
– But I managed to argue with it since Sebastian had lost so much weight, but I got the impression that the doctor wanted us out of there as quickly as possible, she claims to the local newspaper.
Influenza died mysteriously
After the doctor’s appointment, the mother is said to have been told that Sebastian had an ear infection and that she should go to a child psychologist with him.
The mother claimed this was because the GP thought Sebastian was possibly on the autism spectrum.
Autism is according to Health Norway a developmental disorder that leads to difficulties with mutual social interaction, communication and language.
Received his final diagnosis
After Sebastian’s condition did not improve, his parents took him to the hospital.
According to Wales Online, tests showed his oxygen levels were very low.
X-rays are said to have later shown that he had the cancer neuroblastoma.
After the emergency discovery, Sebastian was rushed to Queen’s University Hospital in Nottingham.
Here he was put on a ventilator and given a breathing tube through an opening in his throat, according to Østfold hospital tracheotomy calles.
Death by brain-eating amoeba
– We were told that we could be in the same room, even though there were corona restrictions. The reason was because the doctors did not think he would survive, says his father Gregg Nunney (43).
Sebastian received chemotherapy, which he was treated with for 80 days.
The cancer returned
On 20 June this year, Sebastian’s parents were informed that the cancer had returned.
According to his father, Gregg, he fell asleep at school and refused to eat.
An MRI examination should have shown abnormal tumors in the pelvis, in the skull and the soft tissue around the eyes.
– He was in so much pain that he just wanted to sleep and cry all the time, says Gregg to the local newspaper.
Need support
Sebastian’s parents claim they are running out of options when it comes to treatment that does not reduce their quality of life.
They have now created a fundraising campaign on GoFundMe to collect money that will go towards further treatment of the cancer.
– We don’t know what the next step is, but there are treatments in Europe and the USA, his parents write on GoFundMe.
2023-08-07 18:37:52
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