Sammy Basso died at the age of 28the Venetian biologist suffering from progeria. He was born on 1 December 1995 in Thiene and lived in Tezze sul Brenta. He had only returned from a trip to China a few weeks ago.
Sammy Basso was having dinner with family and friends at Villa Razzolini Loredan in Asolo (Treviso) when he suddenly felt ill. Ambulance Suem 118 arrived at the scene and doctors tried to revive him, but their efforts were in vain.
Just a few days ago he received the Paolo Rizzi Journalism Award in Venice in the category “Environment and Society” for “the commitment, the spirit of sacrifice, the courage that supports him: a great example to look at with respect and thanks and try to imitate.”
In 2018 he graduated from the University of Padua in Natural Sciences, with a thesis aimed at showing that it is possible to cure progeria through genetic engineering. The following year he was appointed, motu proprio by the President of the Republic Sergio Mattarella, Knight of the Order of Merit of the Italian Republic. In 2021 he specialized in Molecular Biology, graduating from the University of Padua with a thesis aimed at elucidating the relationship between progeria and inflammation.
Basso graduated in Natural Sciences from the University of Padua in 2018 with a thesis dedicated to the existence of treatments to reduce the progression of his pathology. He had also founded the Italian progeria society Sammy Basso (Aiprosab). Sammy Basso he was the patient who lived the longest in the world suffering from Hutchinson-Gilford progeria syndrome, a very rare pathology characterized by “premature aging”.
Researcher and protagonist of more than one documentary on his story, Sammy Basso suffered from progeria: a very rare syndrome that causes premature aging. Sammy fought to raise awareness of his disease, which affects only 5 people in Italy, around a hundred in the world. Originally from Tezze sul Brenta, near Vicenza, he weighed about 20 kilograms, and was about 1.40 meters tall. He is just a boy but he has wrinkles, fragile bones and no hair. His disease is the result of a very rare genetic mutation (of the Lmna gene): those who suffer from it present, even at a very young age, pathologies that indicate old age, such as heart attack, stroke and failure heart
The first signs appeared already a few months old, when he began to show a sharp slowdown in growth. The diagnosis of progeria or Hutchinson-Gilford Syndrome (Hgps) came when he was just two years old and in Italy the disease was almost unknown. Therefore, it is necessary to go for treatment abroad, to the Children’s Hospital in Boston, the main research center in the world, where new drugs are being tested to try to reduce the progression of this disease, which will affects the whole body except mental abilities. At the time of diagnosis, according to doctors he would not have exceeded the age of 13. He lived 28.
Many times as a guest on television, including Sanremo, he was the main narrator of the documentary made in the United States ‘Life According to Sam’ and a docufilm in the programs ‘Sammy’s Journey’, which was broadcast in Italy. The Italian Progeria Association is named after Sammy Basso, founded in 2005 by his parents to raise money for research.
Sammy Basso’s Memoir of the Italian Progeria Society
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2024-10-06 08:03:00
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