Last Sunday, the young Fatima Al-Zahraa Al-Ghazzawi, who was known as the “Girl of the Moon”, died on social media, after a long illness.
Fatima Al-Zahraa suffered from a rare disease known as “dry skin pigmentation” or “moon children” disease.
Fatima Al-Zahraa was famous for her defense of the “Children of the Moon” cause, as she shared their daily suffering and sent messages full of hope and optimism.
During the past few days, Fatima Al-Zahraa’s Instagram page revealed the deterioration of her health condition, as a result of her suffering from acute anemia.
xeroderma pigmentosum
It is basically a genetic disease that was discovered for the first time in 1870. The disease is characterized by severe skin sensitivity to sunlight. The disease is divided into two types, traditional and diversified. The first appears in the infected person from the first months of birth, represented by a severe sensitivity to sunlight, which results in the appearance of red spots on the face and neck, and skin ulcers, which leads to widespread skin cancer. The second represents between 20 and 25 percent of the infected, and this type is characterized by the appearance of its first signs at a late stage, between 15 and 20 years. When people with this disease are exposed to sunlight, even for a short period, severe sunburn appears on the patient’s skin, and these burns may remain visible on the patient’s skin for longer than the expected period, and may last for several weeks.
treatment
There is still no successful treatment against the disease, but the necessary precautions and measures remain the best and most important for the patient.
2023-08-22 08:10:25
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