Pellegrino: «Patients with Sjögren’s Syndrome deserve continuity of care»

The motion presented by the group leader of Italia Viva was unanimously approved by the Campania Regional Council, which met in the afternoon session on Monday Thomas Pellegrinowhich commits the Council to take action to recognise the status of rare disease for Sjögren’s syndrome Primary Systemic and include it in the LEA (essential levels of assistance). «This inclusion, in addition to generating savings in terms of costs related to social and health expenses, is an act of civility that makes the condition of people affected by a complex and serious, autoimmune and disabling pathology, which in nine cases out of ten, affects women, more sustainable and less dramatic, allowing them to be adequately taken care of and monitored through specific Reference Centers.“. Tommaso Pellegrino declared this as he left the Chamber after the unanimous vote of the Council.

«The Rare Disease Network in Campania is an excellence, my recognition goes to Professor Lemons and to the entire group that works on rare diseases for the excellent work they are doing and for the attention that is also dedicated to patients affected by Sjögren’s syndrome despite it not being recognized in the LEA. The Campania Region must act as a spokesperson in the State-Regions Conference so that this recognition can be achieved. The hope is that multidisciplinary clinics can be created in our public facilities to be able to provide continuity in care and assistance to patients. I extend my heartfelt thanks to the President of the Italian National Association of Sjögren’s Syndrome Patients, Lucia Marotta, a precious point of reference for many patients affected by this disease». concluded Tommaso Pellegrino.