Friends
Friends around her become pregnant during that time. On the one hand she is very happy for them, on the other hand she also wants to be home after trying for so long. “My best friend and I were pregnant at the same time. Things went wrong for me after 12.5 weeks. She now has two beautiful, healthy children. They are so sweet. I’m in their lives a lot and their friendship is stronger than ever, but it was really hard to get along at times.”
Her best friend is still her best friend, but Carlijn has also lost many friends in recent years. “Many friends became informal carers. Where they used to come for tea, they now come because you need help with a shower. These are the difficult aspects of the disease that many people do not understand or see. All of that happens behind closed doors. “
Sad thoughts
At the same time, she constantly receives comments about her illness and her attempts to have children. “Maybe they weren’t meant to be ugly, but they hurt. As someone who said when I was pregnant and wearing white pants I had to be careful not to lose the baby now. People don’t really think before they say something. I am from Rotterdam. There are nice and straight people here, including me, but some comments can be so hurtful.”
She is currently putting her desire to have children on the back burner. “If I had a child, I would be the best mother in the whole world. But everything happens for a reason. I hope it comes someday. Fortunately, I still have a life full of children. I’ve been little Dán’s sister for six months now.”
A positive future
For now, she is completely focused on recovery. That’s going well. “I was still blind until two months ago; not anymore. I try to see the positive things in my life. Life is so much better than the bad days with MS. Fortunately, I have the right people around me who hang out for me. I don’t always manage that myself, but the people around me always make it a party.”
Jan Willem’s children have CLN2 and don’t live beyond 12 years: ‘Your world will turn upside down’
2024-04-30 05:04:37
#Carlijn #fourteen #miscarriages
