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Most patients want to share medical data themselves

Being able to view their own medical file (digitally) means that patients can quietly read and check their medical data. This also gives patients a better overview of all medical data in their file.

Sharing medical data yourself

The study also shows that more than eight in ten patients (82%) consider sharing their medical data with other health care providers at least as important as the inspection itself. And access to digital access must be arranged as simply as possible, comparable to logging in and viewing bank details. Safe and convenient.

The Patient Federation advocates a personal health environment (PBL): an app or website where people can collect, manage and share their health data themselves. Consider, for example, information and data about vaccinations and medication use. A PBL offers patients more control over their medical data.

PBLs and extension of legislation

A number of PBLs are already active, but all are still under development. In order to ensure that these PBLs become available as quickly as possible, the Patient Federation works together with the Ministry of Health, Welfare and Sport, care providers, care providers, ICT suppliers and MedMij. The MedMij label stands for a safe and reliable link of medical data from the medical file of the healthcare provider.

With the extension of the Supplementary Provisions for the Processing of Personal Data in Healthcare Act (Wvpz) and the General Data Protection Regulation (GDPR) that have now come into force, everyone has the official right to inspect the medical file digitally and to receive a digital copy of his medical file.

However, the introduction of the new legislation was somewhat nuanced earlier this month. For example, not all previously announced new obligations of the Wabvpz will come into effect on 1 July. For example, the specified patient consent for healthcare facilities to make medical data available through the electronic exchange system. This could lead to each patient having to click 160 consent ticks.

Digital inspection

Various options are available for healthcare providers to grant this access. For example, it can be done via a portal from the healthcare provider, via a (secure) email or via the aforementioned personal health environment (PBL).

Much has been said and written about digital access in recent months. Despite the corona crisis, almost all healthcare providers have still managed to meet the deadline, although in some cases with creative solutions. Especially when it comes to bundling different patient files.

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