Rheumatism
“I was thirty and just a few months mother when the pain started,” says Marloes. “I was incredibly tired and had a lot of pain in my joints, but I didn’t give in to it. I don’t ask for help easily but it got worse and worse.” At a certain point, Marloes could no longer even bear a duvet on her body. “The pain I felt then was almost traumatic.”
After the diagnosis, Marloes immediately received a lot of medication. “That is, among other things, to prevent deformities and inflammation, but the disadvantage was that my resistance deteriorated due to the heavy medication.” As a result, Marloes sat shivering from fever under a blanket on the couch for a few days every week. “I was sick because of the medication, but if I stopped taking it, I would be in a lot of pain again. I was completely stuck and was more surviving than living. And that while I should be in the prime of my life.”
Marloes decided that things had to be done differently and started looking for ways to get her rheumatism under control without much medication. “It was a years-long quest in which I experimented with exercise, diets and my sleep rhythm. I have now reached a point where I am doing well and I can live well with my illness without medication.”
handles
Nevertheless, Marloes would have liked more information about how an adapted lifestyle can help to control rheumatism. “When I got my diagnosis seven years ago, there was hardly any attention for this. The solution then was mainly to take a lot of medication.” Marloes therefore wants to help other rheumatic patients. “I want to offer others tools that I have missed myself.” Marloes will continue to do this on the new platform, among others Reuma.nl to moderate. “That means helping with questions and helping people on their way if, for example, they also want to change their lifestyle.”
Reuma.nl
The platform that Marloes will work for is mainly intended as support and source of information for rheumatic patients. On the website you can find a lot of information about the different forms of the disease, but people can also share their experiences. “You have to see it as a community where people lend each other a listening ear.”
Marloes especially hopes to be able to inspire others. “I know very well what it feels like to have your back against the wall. I hope I can pull others out of there.”
2023-09-06 06:09:29
#Marloes #changing #lifestyle #longer #pain
