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Living normally with HIV: A Hamburger fights the stigma | NDR.de – news

Status: 01.12.2021 10:25 a.m.

For decades, infection with the HI virus was equivalent to a death sentence. But in the meantime medicine has made enormous strides. Those affected lead a normal life in the western world these days. Nevertheless, sick people are still heavily stigmatized – this is also what World AIDS Day draws attention to.


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6 Min

by Anina Pommerenke

Like so many people these days, Axel Wedler is currently working from home. The hamburger has a pot of tea on his desk next to the green houseplant. The laundry is still drying on the drying rack in front of the window. The next video conference is about to start. The 58-year-old is a senior manager at the IT consulting company IBM. Wedler leads a completely normal life today. It looked different in 2002.

video embedded "> A bandaged hand with an infusion in place.

VIDEO: Corona pandemic endangers success in fighting AIDS (1 min)


Sudden illness – then the shock diagnosis

At that time Wedler suddenly became seriously ill, the cause was found more or less by chance: an infection with the HI virus. Wedler had caught it four years earlier while on vacation in the Caribbean. He received a blood transfusion there after a sports injury. As it turned out in retrospect, it was contaminated with the HI virus. The problem: the Caribbean variant of the virus could not be detected as standard at the time. After various stays in hospital and visits to the doctor, a doctor at the University Medical Center Hamburg-Eppendorf was able to pinpoint the cause of Wedler’s poor condition. The diagnosis was a shock, says Wedler. He didn’t expect it at all. In addition, he had already broken out with AIDS. The disease is accompanied by an enormous weakening of the immune system – a certain death sentence at the time.

The virus can no longer be detected in the blood

“The doctors told me to my face, ‘If we don’t treat you, you will die within a few weeks or months. If we can treat you, you will be lucky enough to live another four to five years’.” That was almost twenty years ago. Because of the enormous medical progress, Wedler is doing much better and his immune system has recovered. The virus can no longer be detected in his blood – it is also no longer transferable. He only takes one tablet a day, an incredible relief. At the beginning he had to take 14 tablets a day, at different times of the day, sometimes without combining them with food or drink. Thanks to the new drugs, a normal sex life or family planning is no longer a problem for HIV patients.

additional Information

A man holds a red ribbon as a symbol of solidarity with HIV-positive and AIDS-sick people.  © dpa-Bildfunk


40 years ago AIDS was officially recognized as a disease. Today, medication enables infected people to lead an almost normal life. more




Declaration for more acceptance started

Around 97 percent of those affected in Germany take appropriate HIV medication. But many people are still unclear that the infection will then no longer be transmitted, reports Wedler. Wedler did not deal openly with the disease at first. He initially kept silent about his illness on the advice of his doctors. When he told IBM about it, he received full support, said the man from Hamburg. Wedler is one of the co-founders of the #positivarbeiten initiative – it has been campaigning against stigmatization and exclusion of sick people in the workplace since 2019. Employers sign a declaration. They do not enter into any legal obligations, but they do signal to their employees that they can deal openly with their illnesses without having to fear the consequences. For a long time, this no longer only affects HIV, but also people with depression or alcohol addiction, says Wedler. In recent years, numerous companies and politicians in more and more countries have joined.

HIV / AIDS: Still a lot of clichés

As part of the initiative, Wedler is giving lectures together with a colleague, among other things. Occasionally he noticed in follow-up discussions that HIV / AIDS is often still afflicted with certain clichés: “People got stuck with their knowledge in the 1990s.” The disease is directly associated with a sexual orientation. But some also ask how something like this could happen to an intelligent person – as if it were his own fault.

Holger Wicht from the Deutsche Aidshilfe can also confirm that many of those affected still experience discrimination: “People say that their health is fine, but stigmatization makes life unnecessarily difficult for them again.” That in turn deterred many people from the test – with fatal consequences. Because the earlier the treatment, the better.

Gaps in supply must be closed

But Wicht can also report gaps in supply. For example with the preventive drug “PrEP”, with which partners of infected people can protect themselves from the virus. Especially in rural areas or smaller cities, there are still reservations about the drug, which has been paid for by health insurers since 2019. In some places there is still a lack of clean syringes for drug addicts, for example in prisons. And isolated groups are still being touched with sharp fingers: “People who use drugs, sex workers, people in custody and also people from other countries who have no health insurance here.” However, everyone must have access to preventive means so that the number of new infections is even lower.

The number of new infections is falling

After all: According to the Robert Koch Institute, the number of new infections with the HI virus in Germany fell during the corona pandemic. In 2020, 2,000 people were newly infected. But the problem is global: 38 million people worldwide live with HIV. And by far not everyone has access to medical care, as in Germany. Holger Wicht from Deutsche Aidshilfe therefore also hopes that the new government will become more involved internationally in the fight against the virus.

video embedded "> A picture collage on the subject of AIDS and HIV.  © picture alliance / Panther Media |  Andriy Popov / NDR Photo: picture alliance / Panther Media |  Andriy Popov / NDR

VIDEO: HIV and AIDS – what happens in the body? (6 min)


additional Information

Many red ribbons, the globally recognized symbol of solidarity with those infected with HIV, are on a table on World AIDS Day.  © Lukas Schulze / dpa Photo: Lukas Schulze / dpa


Current figures were announced on the occasion of World AIDS Day. Accordingly, fewer people across Germany have been infected with the HI virus. more



Rosa von Praunheim © picture alliance / Bernd Kammerer Photo: Bernd Kammerer

On World AIDS Day, the focus is on the fight against HIV. Not an easy task in a year when everything revolves around Corona. more




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NDR Info | 01.12.2021 | 09:49 o’clock


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