“Like my body is sticking to chewing gum.” Patients tell of their suffering from the rare Ehlers-Danlos syndrome

Ehlers-Danlos syndrome (EDS) is a group of genetic disorders that affect the connective tissue of the body, resulting in a wide range of debilitating symptoms, including fragile joints, digestive problems, and difficulty regulating heart rate and blood pressure . A patient says, “We were born with this (syndrome) and will never be free of it as long as we are alive.” Hear the stories of 5 people living with this syndrome.