“It hurts all the time, but I keep smiling”

How not to be discouraged? When the body says stop, when the overworked muscles no longer respond, when paralysis threatens and… nobody notices! Margaux, 24 years old and so many smiles a minute, has never let herself down. And yet: “It’s hard, because people don’t want to see the disease. They don’t understand that everyone can be affected. I always need to justify myself: it’s as if we weren’t legitimate, because we are not in a wheelchair. But yes, I walk, but some days, I can not. At the beginning of October, I spent 15 days without being able to move. The handicap is fluctuating and we must constantly explain ourselves! “

But Margaux, rather than explaining herself, would especially like to live, quite simply. Take advantage. And even that, that …

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