No more carers, specialized establishments at a standstill … in Isère, families of disabled children are at the end of their rope. They who already live in “ordinary” times an obstacle course on a daily basis, hang on but are exhausted and are at the end of their strength
–
With the temporary closure of specialized reception centers, the lack of carers or medical support, the pandemic represents an additional challenge for parents of children with disabilities.
In the agglomeration of Grenoble, at the time of the first confinement, we had met them: they were already sounding the alarm bells on their situation.
On this subject, the editorial staff recommends
–
Today, more than a year after the onset of the health crisis, not only have health measures complicated everything, but some of them, parents and children alike, must fight to maintain hope and combativeness, because all the steps taken future are blocked.
In Echirolles, the parents of Adam, autistic, nevertheless consider themselves “lucky”: their little boy can play, run, walk “” we try to relativize ” testifies Hinda “with my husband we can accompany him, surround him, the Covid is not easy for anyone, even if living with the handicap is complicated, it must be recognized, but it is our daily life”.
On the other hand, what worries, and stresses this mom, “it is the administrative procedures that are at a standstill, we do not know at the moment which establishment to turn to, we are afraid that it will last and drag on, if we have to wait 4 or 5 months to get a place, or if it’s still 2 or 3 years, the sky would fall on our heads, we need to know how we can we can prepare a semblance of the future “.
She has been waiting for Adam for three years now, 9 years old today, a place in Institute of Motor Education (IEM).
Report: Merième Stiti, Yves-Marie Glo & Gilles Neyret
–
“The first containment was a tornado”
Servane Hugues is the President of the Association “Loisirs Pluriels”, and the mother of two disabled children, one of whom is severely. This Thursday, March 4, she came to supervise the departure of the children who can once again go to the mountains, supervised, for an afternoon skiing. Sports and leisure activities have finally been able to slowly resume outdoors.
A breath of fresh air for these children who suffer from different disabilities, but also for their parents, who have all been confined with real violence. “It was like a tornado, which shattered our already fragile life balance ” testifies Servane Hugues who looks back on a year of health crisis : “Personally, I haven’t gotten over it yet, it’s as if we had built a house of cards at arm’s length for years, that it is being swept away in a gust of wind, and that ‘we have to start all over again, I have the impression that the Covid has shattered my capacity for resilience.
Testimony collected by Mérième Stiti & Yves-Marie Glo
–
–
