Here’s the drug for Alessia, the 24-year-old trapped in her body by Friedreich’s ataxia: Skyclarys pills bring back hope

Nova Milanese – La ‘magic box’ he comes to the pharmacyBesta Neurological Institute of Milan Wednesday. Then Alessia finally it will be possible to start the a pill for Skyclarysthe drug that is able to slow down, if not prevent, the evolution ofFriedreich’s ataxiaa a rare disease which gradually leads to impotence do the simplest movements, like walking, swallowing, even talking.

“Three pills a day, one after the other, even though they said for the first week to start with two, to reduce any minor side effects,” he says Katia Aracri, the mother of Alessia who is after a year of war added to solvealso in Italy, the Skyclarys. This summer Italian Medicines Agency made the medicine “fully accessible at the expense of the National Health Service”. “One more hope”, Alessia’s view. Even if only at the last visit to Besta, on Friday, “we were sure we were within the limits to get the drug”.

And her mother Katia does not hide it hope: “A girl who has started taking the medicine this summer has returned to making movements that had become impossible for her. Alessia hopes so too. He never stopped believing in it. A year ago he had written to Prime Minister Giorgia Meloniasking her to unlock “his drug”. Now that Alessia has won her first battle, she took the computer and sent a new letter to Meloni. Because “I knew in my heart that she could not pretend that nothing had happened, because even strong armed men have a soft heart.” And for this reason he would like to meet her to “thank her personally”.

Because “so far the Skyclarys the same treatment which could improve my health.” Only now “I look to the future with hope and with that light that before was only dark and black – Alessia’s words -. I want to promise myself one day to be a good psychologist and to help the many people who need it, I want to be useful to others.”