Goings-On app: a brand new app for mind tumor sufferers

TILBURG – The ETZ (Hospital Elisabeth-TweeSteden) will quickly use a brand new app for sufferers with mind tumors in scientific apply; the Goings-On app. On this app, sufferers can inform and preserve observe of what’s essential to them of their every day lives. The app has been used for scientific analysis since July 2022 and can proceed in scientific use because of the first constructive experiences of sufferers and practitioners.

Goings-On App

Sufferers can enter private targets within the Goings-On app and point out precisely what’s essential to them of their every day lives. Corresponding to essential hobbies or what social roles they carry out. As well as, sufferers can observe their signs and targets every day within the app. This may be completed in a couple of minute every day. The usage of the appliance is built-in into care within the neurosurgery outpatient clinic, neurology and within the Neurosurgery division throughout admission to the hospital, specializing in the start of the remedy course of in are many essential selections being made.

The Goings-On app was developed by Petra Hoogendoorn. Her accomplice, Richard van den Heuvel, had a mind tumour. His journey of sickness has been a supply of inspiration for the utility growth.

Particular person-centered selections

Through the use of the app, sufferers are concerned virtually instantly from the prognosis as an essential accomplice within the remedy decision-making course of. Customers have direct entry to what sufferers enter into the app via the Digital Affected person File (EPD). Right here they’ll get to know the affected person higher at a look and due to this fact focus the dialog extra simply on that one affected person. In response to Iris Bras, a PhD researcher at ETZ, that is what it is all about. “Actually coming to a choice collectively, that is what it is all about. On this approach, sufferers are acknowledged as consultants on their very own lives and a dialog might be held concerning the affect of the remedy on the affected person’s life.” Through the use of the app, sufferers are higher ready for the dialog with their practitioner. “If somebody asks you what’s most essential to you in life, possibly you need to give it some thought for a minute. It’s an important query, however it’s typically not straightforward to reply instantly. “

Analysis by practitioners and sufferers

The truth that sufferers can come into the dialog higher ready can also be good for practitioners. Iris: “We have completed an analysis with customers they usually discover the app very pleasing. They wish to know what’s essential to the affected person. ” The app and the reference to the EPD ensures that that is taken care of structurally and with all sufferers. “They will instantly deal with points which might be most essential to the affected person.”

Sufferers additionally present that they’re constructive about utilizing the Goings-On app. “We additionally hear from quite a few sufferers that they take pleasure in reflecting on what’s essential to them each day.”

Analysis

Iris Bras is at present doing her PhD analysis on the Goings-On app. The research will look at the affect of utilizing the Goings-On app on selections. The analysis is a part of ZonMw Main Particular Care and Analysis (TZO) program., goals to personalize the care pathway for mind tumor sufferers. The analysis is carried out in collaboration with the Division of Cognitive Neuropsychology at Tilburg College. The outcomes of the research are anticipated on the finish of 2024.

Are you interested by being notified of developments on this analysis? A e-newsletter concerning the analysis is distributed repeatedly. You may signal as much as obtain this article by emailing Iris Bras, [email protected]

Do you have got questions concerning the analysis? Please additionally contact Iris Bras, [email protected]