on a notable Friday, December 6, the Neighborhood House was the venue for the inaugural gathering of the France Parkinson Landes Committee. Established on July 1, 2023, under the leadership of departmental delegate Hirondina Dos Santos, the committee is comprised of a dedicated team of volunteers, unified in their mission to make a difference. The meeting was an opportunity for the group to reflect on a year filled with fruitful connections, activities, and initiatives.
During the meeting, Hirondina Dos Santos delivered a captivating presentation, outlining the organizational structure and the objectives of the Landes Committee. Under the guidance of France Parkinson, the committee is part of a nationwide network of 80 committees, supported by 700 volunteers. The primary focus is to educate, train, assist, and advocate for Parkinson’s patients, ensuring that their voices are heard by public authorities.
Creating a Solid Support System
Highlighting the importance of solidarity, the president emphasized that 20% of patients are under 50 years old, often facing challenges in the workplace. The committee aims to forge a strong bond among patients, beyond the existing long-term support line. New initiatives include online sophrology courses in Tartas, starting from January, made possible by the funders’ conference. Additionally, nutrition courses in Labenne are in the pipeline, recognizing the critical role of medication timing in patient care.
A suggestion box was placed at the entrance, inviting input from patients and caregivers.Despite initial financial constraints, the committee has received donations, including a generous contribution of 1,250 euros from the organizers of the local Run and Bike event. These funds have enabled the committee to engage physiotherapists and nutritionists, and are now being used to plan a coastal longe-coast experience for the community.
Mayor Laurent Civel expressed his support, encouraging the committee to expand their outreach: “Engage in comprehensive communication. It’s crucial to raise awareness. If needed, municipal services will assist you. But it’s your responsibility to connect with others. Your efforts are truly commendable.”
For more details or to get involved, contact Hirondina Dos Santos via email at Comité[email protected] or by phone at 06 12 73 58 61.
Article, the France Parkinson Landes Committee is an vital initiative aimed at supporting individuals affected by Parkinson’s disease. As established on July 1, 2023, the committee’s inaugural meeting took place on December 6 at the Neighborhood House, were departmental delegate Hirondina Dos Santos led discussions on their objectives and established connections within the community.
The committee is part of a larger nationwide network, comprising 80 committees supported by approximately 700 volunteers.Their primary goals include educating, training, assisting, and advocating for parkinson’s patients, ensuring that their needs and concerns are addressed by public authorities.
A key focus of the committee is to foster solidarity among patients, notably emphasizing the fact that 20% of patients are under the age of 50, who frequently enough encounter specific challenges in their working lives.Upcoming initiatives include online sophrology courses in Tartas and nutrition courses in Labenne, both designed to enhance the support and resources available to patients.
To ensure that the voices of patients and caregivers are heard,the committee has established a suggestion box for feedback.Financial contributions, such as a donation of 1,250 euros from a local event, have enabled the committee to employ specialists like physiotherapists and nutritionists, further enhancing their offerings.
The local mayor, Laurent Civel, has shown his support for the committee and encourages proactive outreach and dialog to raise awareness about Parkinson’s disease within the broader community.
For those interested in learning more or getting involved wiht the France Parkinson landes Committee, they can reach out to Hirondina Dos Santos via email or phone.
