“Cycling to Raise Awareness for FSHD: A Journey of Strength and Hope”

Before his muscles stop working one by one, IJsselsteiner Sjoerd Terpstra cycles to Spain “for a while”. He tells it with a laugh, but unfortunately there is a grain of truth in it. Like his son Douwe, he has one of the most common hereditary muscle diseases. But hardly anyone who knows FSHD. Sjoerd wants to change that while cycling. “Our muscles are kind of being eaten up, and there’s still nothing that can stop that.”