The Coalition of Chronic Disease Patient Organizations launches the DA show on Wednesday, November 9, inspired by the stories of patients with atopic dermatitis.
It is an approach to popularizing the experience that children, adolescents and young people have with atopic dermatitis. To many of us it seems like a trivial disease that reddens the skin and can disappear as quickly as it appeared. This is not the case at all. Patients have major problems with the condition, often unable to sleep at night, have restrictions on what fabrics they can wear, fear colleagues will find out, and more.
A, B and E are three of the young women who told their stories. A is a medical student and is no longer afraid or ashamed. Together with her mother, who is also a doctor, she has gone through all these stages. B is a young and active mother as she receives the right treatment. And she has supportive people around her and she’s been in love with her for a few months now. But that wasn’t always the case. And you will find her experiences in comedy. And she is a young woman who doesn’t want to know about her illness. Only the family knows. She says maybe the time will come when she can speak openly but she hasn’t come yet.
Today he talks about them. And that their stories translated into a game will help other children and teens better understand what their colleagues who have atopic dermatitis are going through and support them.
“People give their opinion without having the slightest idea! As those women did at the BAC, I will never forget how those women looked at me. I was taking the Romanian test and the inspectors came to me: Aoleu, what have you got? I had a little inflammation that day, but who knows what. And they started giving me advice. They told me to use Nivea cream because it worked very well on their face and to try it too“.
Dermatitis is part of me. It is one of my identities that I have managed to embrace and live with!
The show will be performed in the high schools of Bucharest Miguel Cervantes, Jean Monet and Gheorghe Lazăr. The song was recorded and will be posted on Youtube to reach as many people as possible.
The interviews, script and staging were produced by Active Works, a company of professional actors who use drills and acting techniques to help individuals, groups and organizations learn through experience.
The show is part of a COPAC project, realized after winning an international grant, being one of the 5 winning projects from around the world in the global competition “Agents of the case”, established by Sanofi and Regeneron.
