Amelia has a steadfast character and does not give up hope that one day there will be medication available to treat her illness.
The girl’s diagnosis is FOP or fibrodysplasia ossificans progressiva – a rare and progressive connective tissue disease.
When Amelia was born, the pathology of both feet was discovered, the sixth phalanges of the fingers had begun to develop, which were successfully operated on. Around 2020, health problems began, and after long and exhausting examinations, a rare and frightening diagnosis was made.
Regardless of the difficulties, the reporter attends kindergarten, builds play constructor houses with great interest, swims and plays with her dog Larry. Parents emphasize that she has a steadfast character and Amelia does not deviate from what she set out to do. She is the only one in Latvia with this diagnosis, so she has to go to Germany to monitor the disease, and the family also hopes that one day medicines will be available for the disease.
Tonight, the call center of “Angels over Latvia” will be the doctor-pediatrician Dana Isarova, the mentor of the show “X Factor” Aija Auškāpa, the former President Raimonds Vējonis and his wife Iveta Vējones, as well as the rapper Prusax.
You can donate 5 euros to improve children’s health and life by calling 90204114, as well as by donating on the “Angels over Latvia” website.
The project “From a donation to a smile: Angels over Latvia stories” is financed by the Media Support Fund from the funds of the Latvian state budget. All Media Latvia SIA is responsible for the content of “From a donation to a smile: Angels over Latvia stories”.
2023-12-14 07:23:06
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