Little Borja’s parents, who need the world’s most expensive medicine to treat spinal muscular atrophy (SMA), called on the Government to help them manage directly with the laboratory a lower price of the drug Zolgensma, the one with a value of $ 1.5 billion.
In conversation with Julio César Rodríguez in could be worse, the parents of the minor, Rodrigo Díaz and María José, excitedly related the solidarity of the people after knowing the campaign to look for funds and provide you with the treatment prior to your 2nd birthday.
“Borja was born on February 27 of last year, during the first month he was doing very well, but after two months we began to notice a decrease in his movements (…) We took him to the doctor, he tells us it was serious, it die ”, recalled Rodrigo Díaz.
Although they are aware that it is complex to collect the amount they need, María José assured that “We are not going to lower our hands”As this will allow them to lengthen and improve their child’s quality of life.
After thanking the solidarity of the people, they indicated that They do not ask the government to help them with money, but with management, to negotiate directly with the laboratory in order to lower the price of the medicine..
This, because otherwise they should pay in taxes, $ 320 million extra.
“Most families must sue the state, but we don’t have time or resources for a lawsuit. Our only option is to buy it. “
If the funds are raised within the established term, that is, until December 31, they will immediately buy the medicine and plan to start applying it in February.
To help little Borja, you can enter here.
Check out the interview in full below:
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