A year has passed since Annasya could only lie in bed. The six-year-old girl’s life changed when she was shot Dengue hemorrhagic fever (DHF) a year ago. The delay in treatment made her condition worse and she was diagnosed with encephalitis and pneumonia.
“Yes, for Annasya’s condition, because DHF condition has spread to the nerves in the brain, so the medical term for torment symptoms, DHF torment, causes a nerve disorder condition, so the diagnosis is encephalitis or inflammation of the brain, yes, and pneumonia caused by being in a coma for too long,” explained Fauzan, Annasya’s father in the detikcom Figures program.
Medically, Annasya’s condition cannot be cured. Therefore, the thing to focus on is to increase Annasya’s quality of life. Faced with this sudden condition, Fauzan and her family admitted they were confused.
“Before, we as a family were quite confused, right, because we didn’t have a medical background, so we were still new to the world of medicine, right? So, Annasya’s condition before she was taken home, yes, thank God, I I received input from the Anasya hospital doctor. So, advised and advised Rachel House, yes, so Annasya can be looked after periodically, through the care of a palliative nurse,” Fauzan explained.
Annasya is one of the patients palliative treatment Rachel House Indonesia. Quoted from the Rachel House Indonesia page, palliative care for children includes active and comprehensive care for the child’s body, mind and spirit, including family support. The support for the family in question also includes emotional, psychosocial, spiritual and economic support.
Not only that, Annasya’s condition has caused many changes to her family as well. To accompany Annasya, Fauzan chose to leave his job. Adjustments to family members’ rest hours must also be adjusted so that they can optimally care for Annasya.
“We usually sleep at night, we wake up during the day for work activities, that’s true. So, Annasya’s current condition, yes, I, like her father, have to take care of Annasya at night. Then during the day there is his grandmother, and his mother. So yeah, you can take turns, right? I’ve changed my sleep patterns,” Fauzan explained.
Without a basic medical knowledge, home care for children with serious illnesses is not easy at all. Incorrect handling can actually worsen the patient’s condition. Meanwhile, swift and precise action is required to deal with unforeseen situations.
Very influential non-medical factors, next page.
