THE AbbViethe worldwide biopharmaceutical firm, by info marketing campaign urges sufferers to take step one, discuss concerning the illness, concerning the signs and the way they burden their high quality of life, as a result of stiffness, ache, fatigue, lack of sleep. The intention of the data marketing campaign is for sufferers to go to the rheumatologist in time, because the early analysis and the efficient administration of the illness is the key to discount of operational danger incapacity.
Axial spondylitis is a continual, autoimmune inflammatory rheumatic illness that develops slowly over months or years. Sufferers present signs comparable to: ache and stiffness on the base of the again or on the waist and hips, stiffness on waking or after lengthy durations of relaxation and irritationache and stiffness within the shoulders, hips, ribs, heels and small joints within the fingers and ft.
As a part of the data marketing campaign, from Might 13, 2024, these can go to the net web page www.pestodynata.com which incorporates factual details about the illness. It additionally features a dialogue information “Speak about AXSpA”as a useful instrument with suggestions and questions that the affected person can fill out and carry with them to speak with their rheumatologist the whole lot they really feel and make the care they obtain as efficient as potential.
The presentation of the data marketing campaign came about at an occasion with audio system on Dimitrios Karoki, Rheumatologist, Navy Physician, and many others., President of the Hellenic Rheumatology Society and the Skilled Affiliation of Rheumatologists of Greece, the Evangelos Theodorou, Rheumatologist, Ed. Rheumatology Cl. 251 GNA, President of the Scientific Union for Musculoskeletal Well being and Normal Secretary ERE-EPERE. The sufferers have been represented by Katerina Koutsoyianni, President of the Panhellenic Federation of Associations of Sufferers, Mother and father, Guardians & Associates of Kids with Rheumatic Illnesses (ReuMAzin) and John Papadakis, President of the Rheumatoid Affiliation of Crete. From AbbViethe Marilena DimaCompany Communications & Sufferers Relations Specialist, for Immunology, coordinated the occasion and introduced the data marketing campaign and AbbVie’s dedication to all the time be on the affected person’s aspect, providing them options for a greater high quality of life.
Mr. Karokis deal with its significance steady and significant relationship between physician and affected person and famous that: “It is crucial for each affected person to see a rheumatologist early, obtain care and formulate a therapy plan, instantly. It’s equally essential that the affected person and the rheumatologist create one relationship of belief, to be in common communication, to evaluate the progress of the therapy and to re-evaluate the therapy objectives in a well timed method, if deemed crucial. Two-way, open communication with the rheumatologist is effective for sufferers at each stage of illness administration. Rheumatologists have developed instruments to facilitate efficient communication with sufferers. Probably the most essential instruments is the event of focused questionnaires which, when sufferers reply actually and clearly, show to be a beneficial evaluation instrument for the extent of illness exercise. Thus, we intention on the individualized wants of every affected person, providing the suitable therapeutic answer.”
Mr. Theodorou famous that: «Management of signs constitutes a serious problem for rheumatologists and that is elevated by early analysis and administration of the illness as soon as signs seem. Because of steady scientific progress and pharmaceutical innovation, sufferers can set excessive therapeutic objectives. Rheumatologists have at our disposal new, modern therapy options which can be protected, efficient and simpler for sufferers to adjust to. Because of personalised therapy options, sufferers obtain essential short-term, long-term and private objectives, comparable to partaking in a favourite interest, performing easy each day actions easily and with out ache. Lastly, he known as the marketing campaign ‘SAY IT LOUD – Discuss About Axial Spondylitis’, essential information to ensure that the affected person to have an accurate supply of details about the illness and its administration strategies.
Ms Koutsoyiannis said that it’s decisive early medical intervention and emphasised that: “the best info, the correct preparation of the affected person for the assembly with the physician and the unimpeded entry to pharmaceutical innovation, are confirmed to avoid wasting lives. THE briefing, preparation and the joint determination with the doctor for the therapy routine of selection, are key instruments that result in a profitable physician-patient relationship. THE entry to innovation is a crucial situation that gives the affected person the opportunity of selecting between many new modern therapies, and based mostly on the individualized affected person profile, wants and therapeutic purpose, may give him the suitable therapeutic answer. Modern therapies give sufferers the chance to say excessive therapeutic objectives in an effort to take pleasure in a top quality and purposeful life. Affected person enter is important to enhance the standard of care and entry to the latest modern therapies. A prerequisite for the well being system is the utilization of the affected person’s experiential expertise in an effort to implement insurance policies that put him on the heart”.
THE Mr. Papadakis, referred to his private expertise as a affected person with ankylosing spondylitis. He highlighted vital variations between the previous and current by way of out there, modern therapy choices and entry to them and famous that: “Sadly, we waste beneficial time as a result of lack of understanding and non-referral to the suitable doctor. Time irreversible for the well being and high quality of lifetime of the sufferers. It’s essential to have entry to right details about signs, analysis and out there therapy options. The knowledge marketing campaign ‘SAY IT LOUD – Speak about Axial Spondylitis’ it’s a part of an total effort and synergy with all companies to create empowered and knowledgeable sufferers who’re companions and fellow vacationers within the therapeutic course of. The empowered affected person contributes to shared decision-making and self-management of the illness. Every go to is an event for the affected person to share actually how he feels, the signs, seen or not, whether or not they stay unchanged, or enhance or worsen, in order that the physician is ready to counsel the suitable therapy, stopping potential irreversible injury. It’s essential to really feel assured to debate with the rheumatologist our considerations and to ask questions concerning the therapy plan we’re following, for the most effective administration of the illness, setting excessive therapeutic objectives.”
Ms Labrina Barbetakis, President & CEO of AbbVie Greece, Cyprus & Malta, added that: “At AbbVie, our patient-centric nature is the start line and vacation spot of the whole lot we do. Our precedence is to establish essential therapy gaps and supply solutions by innovation and science. The wants of sufferers gas our ardour to advance analysis in immunology, particularly rheumatology. The knowledge marketing campaign SAY IT LOUD – Speak about Axoniki spondyloarthritis fills the data hole and motivates extra sufferers to hunt a greater high quality of life. The marketing campaign is a wake-up name for sufferers, to be told, to talk ‘out loud’ about what they really feel and to go to the rheumatologist in time, who’s the one one competent to form the framework of illness administration, to suggest efficient therapeutic options for a extra purposeful on a regular basis life. Everybody can go to the location www.pestodynata.com and to be told about axial spondyloarthritis”.
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