Local correspondent in Var and secretary general of the association “Épilepsie France”, François Latour is also affected by the disease. On a daily basis, he fights against the isolation of epileptics by trying to build a community in Draguignan. Where, for the time being, nothing has yet been put in place. Encounter.
Are there any activities planned in Draguignan on this International Epilepsy Day?
Yes. The town hall has agreed to illuminate the Clock Tower in purple. This year, we cannot do more due to a lack of human resources. This disease is too little known, there is everything to promote in the territory.
What actions are you taking to change this?
I have two missions: to support caregivers and people suffering from epilepsy. I organize meetings to popularize the disease. Then, I try to mobilize the local population to create events in the sector. Because ultimately, if it is not known, it is because it is not understood and ends up causing fear and being erased by denial. I would have liked to see things click into place when I needed them. This is why I am so committed to the association.
You work in schools. Are children the key to changing public opinion around epilepsy?
Yes, it is highly possible. Tolerance must be acquired very young. Children are able to change their gaze towards a friend who suffers from this disease, which can terrify them. It’s more complicated to question your prejudices as an adult.
What are they afraid of?
Generalized tonic-clonic seizures. Suddenly, the person loses consciousness, falls to the ground and convulses. Since people don’t understand what’s going on and don’t know how to act, they turn their heads and walk away. People with epilepsy very quickly find themselves isolated because of ignorance.
What to do when witnessing a crisis?
The patient must be kept safe. Remove anything that could hurt him during his convulsions. Put something under his head. Above all, do not try to prevent him from convulsing. Or put anything in his mouth. He won’t swallow his tongue, that’s a legend. Finally, as soon as the movements calm down, try to put him in the lateral safety position.
Would you like to launch actions in Dracénie this year?
The idea would be to raise the awareness of as many supervisors as possible. Whether at school, in sports, in a holiday centre. Adults should be prepared to intervene safely if faced with this type of situation. Then also prevent the dangers of water.
That is to say?
Drowning is the leading cause of accidental death in epileptics. Especially at home, in the bathtub. It is best to take showers. Also, avoid walking alone near a canal or even swimming in the sea.
An event not to be missed?
On March 5 on the association’s website, we are organizing a conference that everyone can follow. On the program, testimonials, keys and advice for living in community in full awareness of this disease.
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