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More people with eating disorders and longer waiting times for treatment: new initiatives should help

It is not possible to reduce the waiting lists for people with an eating disorder. The number of patients is increasing and the time you have to wait for treatment is also increasing, according to a tour of EenVandaag. And that has major consequences.

“The mental health care system was already overloaded, but now it is really getting out of hand. You notice that waiting times are only increasing,” says pediatrician Annemarie van Bellegem of Amsterdam UMC. “The waiting times are sometimes half a year and sometimes even longer.”

‘Institutions point to each other’

According to Van Bellegem, the long-term impact of an eating disorder is underestimated. “They are people who can suffer from their eating disorder for the rest of their lives and therefore need to be treated quickly and properly.”

Due to the increasing number of patients and the dropout of healthcare staff, the care for eating disorders has become so overloaded that many people can only go if the problems are really serious, says Van Bellegem. “Institutions refer to each other and that’s how you, as a patient, are sent from pillar to post.”

info

Are you dealing with an eating disorder and are you looking for help? Talk to a counselor from MIND Kor Relatie via 0900-1450 or find here more possibilities. Or check out the website of First EET Kit.


bad relationship

Anouk Visser knows what it’s like to look up to a long wait. She developed an eating disorder when she was 20: “I just came back from a trip around the world and had gained some weight. I thought: I’ll work it out.”

“I ended up in a ‘toxic relationship’ with someone who really talked me into that it was better to lose some weight. From there it slowly deteriorated,” she says.

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Lockdown as low point

“I was always very insecure and therefore easily influenced. I’ve had many different treatments and in waves sometimes it went well and other times it didn’t.” Anouk says that the lockdown in 2020 was one of the lows in her journey.

“I noticed that I found it very difficult to deal with the change. It isolated me. And because there were no clinics open, I didn’t really know where to go.”

Anouk Visser had a lot of help from IsaPower

No waiting time

On the recommendation of her work, Anouk ended up at Isabelle Plasmeijer’s IsaPower. She didn’t have to be on a waiting list. IsaPower works with experienced experts. They do not see themselves as a bridging waiting period, but as a coaching program for people with an eating disorder.

“What we often notice with our clients is that they really see the value of people who have recovered from an eating disorder. We make our contact accessible and can see our clients in the short term,” says Plasmeijer.

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View the report about new initiatives that should help people with an eating disorder.

‘It requires customization’

She says that she thinks it is important to make people feel safe. IsaPower works as an alternative to mental health care, but according to Plasmeijer it is different for everyone. “Our role is very diverse because there are many snags to an eating disorder. It requires customization.”

“On the one hand it is supporting a complex illness and on the other hand it is offering an alternative to mental health care. Sometimes it does work as a bridging waiting period, but sometimes it also helps to have conversations and we really listen to that.”

Farm

Another place where people with an eating disorder can go without waiting time is the Leontienhuis. The farm was opened in 2015 with the aim of being able to walk in without obligation and to be helped by experience experts.

Participants also come to the house who do not have to go to a clinic, but who do seek help.

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Living room feeling

“We can accommodate participants of all ages. Our youngest is 9 and the oldest is 65,” says program leader Anne-Marie van der Klugt. Van der Klugt says that various activities are done together with all participants in the house.

“There are creative moments, but also eating moments together, and conversations.” The main goal is to ensure that as a participant you get a living room feeling without it becoming a clinical setting. This makes it easy for participants to walk in.

nice example

Initiatives such as IsaPower and the Leontienhuis are not the only ones in the Netherlands. Van Bellegem sees this type of bridging waiting time emerging more and more often. But she says the term should be used with caution: “It sounds like waiting for something, and that’s a bit crazy. You have to see it as part of the treatment.”

“I support the use of experiential experts and their expertise. I think these kinds of initiatives are a very good example for others, certainly combined with psychological help. It is very nice to use people who understand people with an eating disorder”, says pediatrician van Bellegem.

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‘From the end of 2025 insight and overview’

The Ministry of Health says in a response that it expects to know what the waiting lists consist of around 2025. “The approach is aimed at creating insight and overview of waiting times at the regional level.” Work will then be done on a better picture of the waiting times and the underlying causes. “We expect that national insight and overview will be available from the end of 2025.” The government has made extra money available for this.

In addition, extra money has been made available in the short term to increase the crisis capacity of acute youth mental health care. “If municipalities and care providers do not succeed in helping with disorders, people can turn to so-called ‘regional expertise teams’. If that does not offer a solution, the ministry states, “they can refer to the supraregional expertise networks to think along with a case.”

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Pediatrician Annemarie van Bellegem tells in this video what goes on in the head of someone with anorexia

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