Patient organizations ALS Patients Connected and Duchenne Parent Project are tired of waiting for a vaccination against the corona virus. They want Minister Hugo de Jonge of Health, Welfare and Sport to fulfill earlier promises and to give people who suffer from these progressive muscle diseases with a priority injection.
They point out that the ministry had previously reported that people with ALS and Duchenne had their turn in mid-February, after which De Jonge wrote that they would be vaccinated in week 9. “This promise was not implemented or followed up without giving a reason. Inquiries at the RIVM showed that weeks of ‘consultation’ were taking place,” the patient organizations say.
On Wednesday, the minister tweeted that they will still receive their vaccination next week. “Unfortunately, there is no indication that this group will actually be vaccinated in the coming week, for example, patients have not yet received an invitation and it is still uncertain where and by whom they will be vaccinated. It is unacceptable if the vaccination of this group is delayed again. increases. “
The organizations point out that people with ALS and Duchenne are at risk if they get the virus. “Many of them are already on artificial respiration and most of this group have been living in complete isolation for over a year in their very limited time of life.” They don’t come out or see friends or relatives. “Don’t consult, but vaccinate. Finally give us the promised vaccine.”
Photo: GGD Hollands Midden
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