Clear guidelines and rules

Oldenburg

In the case of serious, rare diseases, genetic testing is useful. It can help confirm the clinical diagnosis and support treatment strategies, emphasizes Prof. Dr. John Neidhardt. In Germany there are clear guidelines and rules for genetic testing that protect the rights of patients. For example, the analyzes are combined with a detailed consent from the patient or parent or guardian. Since rare diseases are not yet sufficiently understood, it makes sense for patients and family members to donate a blood and tissue sample for research.

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